Get Ready! Get Set!….

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Note: Except for quotes in italics, words in the post are Marie’s.

Introduction to SICK & TIRED

Author Kimberly Rae has a personable, down-to-earth, at times whimsical and funny, at times emotional and heart-rending, style of writing.

You are going to love reading SICK & TIRED. From the first words, I was nodding my head. Kimberly is one of us. She is a sickie, a spoonie, a daily warrior, a Christ-follower, a real live person battling often invisible symptoms of chronic illness.

Yep. We get it. If you are doing this study with us, you likely either have a chronic illness yourself, or you are close to someone who lives with chronic illness. Get ready for encouragement as you read SICK & TIRED. Get ready to laugh, and at times, to get a little teary-eyed.

Here are some of her own words from the the Introduction.
See if you identify:

“Sometimes I want to slap a sticky note on my forehead that says, ‘I am sick. No, I don’t look sick at this moment. But I am not faking having a disease just because I’m not in a wheelchair, and I am not a freak.’ “

“Nobody wants to have a condition that affects their social outings, work choices, family life, and just general day-to-day stuff.”

“For those of us with chronic illness, we’ve had to give up some or all of those freedoms. And they probably didn’t seem like freedoms at the time. We likely took them for granted until our bodies took them from us. Now here we are, active brains inside limited, broken bodies. But as technology has yet to create a way to get an entire body transplant, we’re stuck with it.”

Discussion:

To make reading easier, kindly refer to the question number when commenting.

1. When someone says, “But you don’t look sick!”, what is your initial gut response? How do you actually respond, and why do you respond this way?


2. Do you find it hard to make plausible excuses when you have to cancel an event or appointment? How do you usually handle cancellations due to your chronic illness?


3. What freedoms have you given up due to chronic illness? Have you taken those freedoms for granted in the past? Do you fear future loss of freedoms?


One thought on “Get Ready! Get Set!….

  1. 1. Since my MS diagnosis in 1983, I have heard the comment “But you don’t look sick” scores of times. Usually my response is “Thank you”. Inside, though, I sigh. Unless a person lives with chronic illness personally, or is close to someone who does, it unlikely they will understand. Many of our symptoms are invisible, and these may be the most debilitating, painful, and frustrating. I have found that if someone is really interested, they will look me in the eye, maybe touch my hand or shoulder, and ask, “Really, how are you feeling?”

    2. I actually cancelled a very important medical appointment just yesterday morning. It was 95 degrees outside, our car is without AC, and the office was 45 minutes away. That cancellation was easy. I rescheduled.
    The harder cancellations are invitations by family and friends. Recently I missed my dad’s 96th birthday dinner, and an exciting award presentation on another day. I know my body’s limitations and the energy cost for events like this are high. On both occasions, just getting dressed and ready to leave left me exhausted. I cancelled with feelings of disappointment and guilt. Sigh again.

    3. I’ve been blessed to lose freedoms gradually through the years. I think that has made the adjustment somewhat easier to accept. Many of the losses have been due to extreme fatigue and imbalance as well as invisible symptoms.
    – I miss being in the worship service at church on Sundays. I’m thankful for podcasts.
    – I miss traveling. One of our sons lives 3000 miles away. It’s hard.
    – I miss entertaining in our home. I can’t plan ahead because I may have to cancel.
    – I miss wearing heels occasionally. I do like my trusty Clarks® slides.
    – I miss sleeping on a bed. Because of muscle spasms, I sleep on a power LaZBoy.
    – I miss taking a tub bath. I’m thankful for my swivel-slide shower chair.
    – I miss reading actual books. With advancing Macular Degeneration and 4th Cranial Nerve Palsy, I rely on my iPad and computer with backlight and enlarged fonts.
    – My greatest fear is losing the freedom of sight. I’m an avid reader and researcher and dread losing my central vision, which will mean I can no longer drive either.

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